


Volume 21 No 6 (2023)
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CAREGIVER BURDEN AMONG PRIMARY CAREGIVERS OF CHILDREN WITH INTELLECTUAL DEVELOPMENT DISORDER AND ITS ASSOCIATION WITH PERCEIVED STRESS
Abhilakshya Jyoti , Prerana Gupta , ManishTyagi , Khushwinder Awasthi , Prashant Singh ,Akul Gupta
Abstract
Family is considered a main support system for children with Intellectual
developmental disorder all over the world and especially in a country like India. Hence,the caregivers
are mostly the parents or immediate family members of the children. Many caregivers do not adapt
to the news of raising a child with special needs. They fear social embarrassment and are unable to
cope with the stigma associated with intellectual developmental disorder. This in turn leads to social
isolation amongst the caregivers which can lead to depression and loneliness
with intellectual developmental disorder. In this study, we would mainly focus on how the
caregiver burden in primary caregivers of children diagnosed with intellectual developmental
disorder and its association with the stress levels
Keywords
caregiver burden, perceived stress, intellectual disability
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